'Thank you' doesn't somehow adequately express the gratitude we feel for the love, kindness and generosity we have experienced during this venture for 'Gracie'.
Today a wonderful family presented us with a cheque for £725.00. They took it upon themselves to raise funds to help our little girl and their friends, co workers and children gave liberally and lovingly. They wish to remain anonymous as it they feel it is of the Lord and that he should rightly get the glory. God has truly met our need in an amazing way and for that we are deeply moved, humbled and thankful. I never dreamt that less than three months after starting up this blog, I'd be ringing up the rep telling him to bring the car seat on over!
And here is what you all have achieved! This is the car seat - made by the Danish company R82 who supply all of Europe. They like most companies are costly but the stuff is robust and built to last. The basic chair part is retailing at £1964.00. The additional parts are: headrest £152.00, 5 point belt £76.27, foot board £132.00 and fixing strap £110.00. The total would normally cost £2397.00. The government do not supply this item to parents. Now here is the really neat part:
This year Europe brought out some new regulations. Last year's stock only meet three out of the four so R82 have a few ex demos knocking around that they can't sell as new. The rep has sourced one in the correct size and they are knocking £1000 off the chair price. We also don't need a new head support as the one in Gracie's R82 bike trailer is identical to the car seat one. So the total required is just over £1,200 which we now have!! There are other car seats retailing for around the same amount, but none are specifically manufactured to offer the level of support that is needed. TG has mixed cp, both athetoid and spastic quad. This one swings out to make it easier to place a child in, before swivelling round and clicking into place. The lateral support and wrap around headrest are crucial and reclined position will mean that she won't be continually having to try and hold her head up. The Panda seat is a variation of the seat in her Panda bike trailer we got a few years back and really works for her so I am delighted that she is getting this particular car seat. Nothing is impossible with God!
I will continue this little blog for updates and news and will post a picture of Miss T modelling her new car seat as soon as it arrives.
Yours gratefully,
The Mc gang.
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